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Clinical Trials
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USTMA Patient Resources
Learn more about USTMA’s free patient resources.
Thrombocytopenia Copay Assistance Program
TAF is currently accepting requests to join the enrollment waitlist for this program. Waitlists are administered on a calendar-year basis. At the end of each calendar year, waitlist applications expire. Patients still seeking assistance must join waitlists for the subsequent calendar year.
PRESS RELEASE: Pivotal Phase 3 Data Presented at ISTH 2023 Congress Spotlight TAK-755 Prophylaxis for Patients with Congenital Thrombotic Thrombocytopenic Purpura (cTTP)
On Sunday, June 25, 2023, Takeda announced, interim data from our pivotal, Phase 3 clinical trial on TAK-755 (recombinant ADAMTS13) replacement therapy for the prophylactic treatment of congenital thrombotic thrombocytopenic purpura (cTTP).
“You May Have This Disorder—And Not Even Know It”, Black Health Matters.com
Black Health Matters highlighted our Beloved Reeshemah Wynn.
Reeshemah Wynn went to the emergency room with what she thought was the flu, but she was later diagnosed with a rare blood disorder called aTTP.
“Health Following Recovery from Immune Thrombotic Thrombocytopenic Purpura: The Patient’s Perspective”, Blood Advances
Blood Adv 2023; 7 (9): 1813–1822. doi: https://doi.org/10.1182/bloodadvances.2022008342
Authors: Rachel A. Kelley, Marshall K. Cheney, Clare M. Martin, Spero Cataland, Lauren B. Quick, San Keller, Sara K. Vesely, Amanda J. Llaneza, Mohamad O. Khawandanah, Janna M. Journeycake, Julie A. Panepinto, Deirdra R. Terrell
“Survival after acute episodes of immune-mediated thrombotic thrombocytopenic purpura (iTTP) – cognitive functioning and health-related quality of life impact: a descriptive cross-sectional survey of adults living with iTTP in the United Kingdom”, Hematology
Hematology, 26:1, 465-472, DOI: https://doi.org/10.1080/16078454.2021.1945236
Authors: Steve Holmes, Lauren Podger, Catherine Bottomley, Ewelina Rzepa, Karen M. A. Bailey & Fleur Chandler (2021) Survival after acute episodes of immune-mediated thrombotic thrombocytopenic purpura (iTTP) – cognitive functioning and health-related quality of life impact: a descriptive cross-sectional survey of adults living with iTTP in the United Kingdom
Orpha.net, Portal for Rare Diseases
Learn more about Thrombotic thrombocytopenic purpura at Oprha.net, The portal for rare diseases and orphan drugs.
Videos
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The Ree Wynn Foundation Interview
Watch videoWatch The Ree Wynn Foundation’s Founder, Vicki Nicolls and President, James Wynn talk about the foundation on WiMG 1300AM.
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The Science Of TTP
Watch videoDr. Allyson Pishko explains the science behind TTP (Thrombotic Thrombocytopenic Purpura). She answers what causes it, How it’s diagnosed, and How it’s treated.
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TTP and Long Term Complications
Watch videoPresentation by Spero Cataland, M.D. Professor of Internal Medicine, Division of Hematology Ohio State University Columbus, Ohio United States
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Thrombotic Thrombocytopenic Purpura (TTP): From Discovery of ADAMTS13 to Practice Guidelines
Watch videoThrombotic Thrombocytopenic Purpura (TTP) From Discovery of ADAMTS13 to Practice Guidelines Presented by Long Zheng, M.D., Ph.D Department of Pathology & Laboratory Medicine University of Kansas Medical Center August 10, 2020
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Advances in TTP Treatment
Watch videoPresentation by Marshall Mazepa M.D. Advances in TTP Treatment. In tribute to our upcoming TTP EDUCATION DAY on June 22nd, we take a look back at one of last year’s presentations.